Ethics dialogue appetizers (Febr. 28 - March 6)
with Michelle Brear (South-Africa), Pinky Shabangu (Eswatini) and Barbara Groot-Sluijsmans- Health Economics and Stakeholder Engagement (Febr. 28, 15.00-16.00)
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Tools for ‘good’ research partnerships for health and well-being (March 5th, 9.30-10.30)
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Participatory methods in policy making around adolescent obesity (March 5th, 11.00-12.00)
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Ethics in participatory research with children and adolescents (March 6th, 9.30-10.30)
Zie hieronder het programma in detail.
Health Economics and Stakeholder Engagement (Febr. 28, 15.00-16.00 - VU Amsterdam)
Commercial determinants of health in sub-Saharan Africa
In this session we will discuss stakeholder engagement in Health Economics and Decision Science. Michelle works as a Senior Researcher at the University of the Witwatersrand’s School of Public Health in South Africa. Together with her colleagues from PRICELESS-SA (Centre for Health Economics and Decision Science), is collaborating in a project about commercial determinants of health with University of Edinburgh (Scotland) and two other African institutions (University of Ghana and African Population Health Research Centre). Her role is to co-lead a work package about stakeholder engagement, in which she will facilitate involvement of co-researchers from local and international non-governmental organisations, in collecting data (crowdsourcing) and acting on the results. What can we learn from this study about engagement in Health Economics in the Netherlands?
Tools for ‘good’ research partnerships for health and well-being (March 5th, 9.30-10.30)
Equitable research partnerships toolkit-development and implementation
A short presentation about the Equitable Research Partnerships Toolkit, which is focused on equity issues in international research partnerships, involving researchers from the Global South and from the Global North. The toolkit is a set of 20 participatory tools that can be used to stimulate critical discussions, and capture data, about equity issues and solutions. Michelle and Pinky developed, implemented and evaluated the toolkit. In this session we discuss the question: What elements of the Toolkit could be relevant for the Dutch setting in promoting equitable research partnerships between people in research that aims to reducing health equity in neighboorhoods?
Participatory methods in policy making around adolescent obesity (March 5th, 11.00-12.00)
Barriers and enablers of implementing policies to reduce adolescent obesity
This four year project just started and involves a range of stakeholders to explore the barriers to improving the policy environment, to prevent adolescent obesity. Michelle her role is within a work package that will be implemented in 2025, to explore adolescent perspective of the barriers to and enablers of policy implementation, using participatory methods. In this presentation, she will describe the participatory workshop-based approach that will be used to involve youth in the research. She will also reflect on some ethical dilemmas she has encountered, relating to how to make participatory, research about a pre-determined topic that adolescents have no lived experience of. What are the ethical issues around participtory methods in this project? How to deal with this?
Ethics in participatory research with children and adolescents (March 6th, 9.30-10.30)
Engagement around community-based care, sustainable development and migration
In this sessions Michelle and Pinky present two projects: 1) a participatory action research about community-based care of children in rural Eswatini (2012-ongoing) and a participatory research about adolescent perspectives of sustainable development and migration in Qwaqwa, rural South Africa (2018-2019). In both studies around 10 co-researchers were involved to collect consent and assent from parents and children and collect research data from children and/or teenagers. Alongside both participatory research projects, Michelle conducted ethnographic studies about the process and outcomes of community-based co-researchers’ participation. Pinky and Michelle present their insights and reflections on the projects related to ethics. They will describe ethical issues in the studies related to “empowerment” and “utilitarian” outcomes and designing and implementing ethical procedures with co-researchers from community-based youth organisations. What can we learn from these process insights for the Dutch situation of ethics in participatory research?
Deze Ethics dialogue appetizers zijn onderdeel van de Dutch ethics & Participatory Research Week 2025.